#BtheVoice Video Library
The B the Voice story bank is a global effort to elevate the voices of those living with hepatitis B. It’s a compliment to the #justB storytelling campaign that focuses on the U.S. Each story is unique and is told by a person living with hepatitis B. Many of the topics covered by the storytellers include stigma, discrimination, access to healthcare and more.
Cash’s story of living with hepatitis B in Taiwan
Cash knew that she had hepatitis B at the age of 14, during a regular school health check-up. She was told that everything was fine, no need for treatment. Unfortunately, a liver tumor was discovered and found to be a malignant cancer. She underwent surgery and took part in a clinical trial to prevent the cancer from coming back, and started to take antiviral to control the virus.
Jacky’s story of living with hepatitis B in Taiwan
During his freshman health check-up in college, Jacky discovered he had hepatitis B. Initially informed that no treatment was required as everything seemed fine. However, last year, he encountered esophageal bleeding stemming from liver cirrhosis. Following surgery, he commenced antiviral therapy and refrained from consuming alcohol.
Xiaohui's story of living with hepatitis B in Taiwan
Xiaohui has been a carrier of hepatitis B since childhood, but she has always been healthy and symptom-free. Her liver shows no signs of inflammation, fibrosis or cirrhosis, and she rarely even catches a cold. Regrettably, a massive liver tumor was discovered at the age of 36. Despite surgical removal, it unfortunately recurred and had spread to other organs. Xiaohui is on targeted drug therapy covered by government health insurance. If the drug fails one day, she hopes the government will continue to help her. Xiaohui does not meet government insurance criteria for the latest immunotherapy plus targeted drug. She is now being treated with chemotherapy and a second line immunotherapy at her own expense. We urge the Taiwan government to expand access to first-line immunotherapy and targeted drugs, giving Xiaohui a better chance to survive and raise her children. Hepatitis B is the main cause of liver cancer. There are vaccines to prevent infection and drugs to control the virus. Vaccination and treatment can greatly reduce liver cancer risk.
Mike’s story of living with hepatitis B in Taiwan
At birth, Mike Lin contracted the hepatitis B virus through vertical transmission from his mother. However, he showed no obvious symptoms until a severe and sudden flare of hepatitis in 2005. He then began oral antiviral treatment, which he continues to this day to control the virus. In 2012, he discovered a liver tumor for the first time. Despite surgical removal, it unfortunately recurred twice. After multiple surgeries, embolizations (TAE), and Radiofrequency ablation (RFA) treatments, he is fortunate to have stabilized both his hepatitis B and liver cancer for many years. Mike urges individuals with chronic hepatitis B to undergo regular check-ups and to eliminate unhealthy habits, allowing them to lead lives similar to those without the condition. Hepatitis B is a primary cause of liver cancer, but it can be prevented with a vaccine and controlled with medication. These interventions significantly reduce the likelihood of developing liver cancer.
Kenneth’s story of living with hepatitis B in Uganda
Kenneth's personal experience with hepatitis B, including losing a friend to the disease and his own diagnosis, led him to create the National Organization for People with Hepatitis B. The organization is focused on eliminating stigma, increasing awareness, and advocating for services for people with hepatitis B.
Nathaniel's story of living with hepatitis B in Nigeria
Nathaniel found out he had hepatitis B shortly after losing his father to liver cancer caused by hepatitis B. He describes that many people in Northern Nigeria are unaware of hepatitis B. Nathaniel shares more about his experience with getting treatment. Nathaniel describes the challenges of accessing treatment in Nigeria can be costly. He describes that the same treatments are free for HIV and hopes that the same program can be extended to hepatitis B.
Shaibu talks about living with hepatitis B in Tanzania
Shaibu is from Tanzania and found out he had hepatitis B at a young age. As a child, Shaibu and his brother were unfairly isolated from others in school because of their hepatitis B. Paying for treatment was costly. The family had to sell livestock and fundraise to try to get care. Since his brother's death from cirrhosis, Shaibu has been working to raise awareness about hepatitis B.
Sonia, Nigeria: #ICantWait To Vaccinate My Baby
Sonia brings a voice to the almost 300 million people living with hepatitis B in her #BtheVoice interview. She discusses how important it was for her to vaccinate her children at birth and the hurdles she faced in receiving the birth dose vaccine in Nigeria. It was costly, and unavailable in her town, so they had to travel to get the dose.
She also discusses to issues with stigma and discrimination and admits that she has not told many people outside of the medical community. She stresses the need for understanding of the virus and states, "It does not make you less than a person."
Ismail, Nigeria: #ICantWait for a World Without Stigma
Ismail is one of almost 300 million people with hepatitis B. He found out that he had hepatitis B when he got a required medical test. Thankfully at the time his hepatitis B was diagnosed it was found that his liver was normal and the infection was inactive.
John, Nigeria: #ICantWait To Get Treated for Hepatitis B
John: #ICantWait to get treated for hepatitis B
Gold, Nigeria: #ICantWait To Tell My Friends To Get Tested and Vaccinated
Gold: #ICantWait To Tell My Friends To Get Tested and Vaccinated.