Stories About Hepatitis Delta
Hepatitis Delta (hep D) is a coinfection of hepatitis B (hep B). You must have hep B in order to have hep D.
Trieu from Vietnam and America
As both a doctor and a patient, Trieu’s journey with chronic hepatitis B has been marked by decades of silent symptoms, life-threatening complications, and ultimately, a life-saving liver transplant. Diagnosed after immigrating to the U.S., Trieu tried to move on—but the virus didn’t stay quiet. Years later, internal bleeding and rare complications brought him to the brink of death. In this powerful and emotional story, he shares how treatment, advocacy, and resilience gave him another chance at life. Trieu hopes his experience empowers others living with hepatitis B to speak up and seek the care they deserve.
Dilrabo from Uzbekistan
Dilrabo’s journey with hepatitis B began 18 years ago, but everything changed when she was later diagnosed with hepatitis D. At first, she felt fear, confusion, and isolation — unsure how to move forward. With the help of her caregiver and support from others living with hepatitis B and D, she slowly found strength and hope. Today, she manages her health through medication, lifestyle changes, and self-care. Her story is a powerful reminder of the importance of support, staying positive, and never giving up.
Dilnora from Uzbekistan
Dilnora has been caring for her sister with hepatitis B since 2005, offering physical, emotional, and logistical support throughout her health journey. After her sister was later diagnosed with hepatitis D, Dilnora shifted her academic and professional focus to hepatitis education and advocacy. She pursued graduate studies in health communication, worked as a patient navigator and researcher, and helped launch a support group for people with hepatitis B and D in Uzbekistan and the U.S. Dilnora emphasizes the importance of mental health, family communication, and community support in managing chronic illness.
Rav from Uzbekistan
While growing up in Uzbekistan, at the age of 2, Rav was diagnosed with hepatitis B. As a result, Rav was not allowed to play sports at school with his friends. Thankfully, Rav’s family spared no cost in helping him, and by the age of 20, he was able to live with hepatitis B and not worry about it much. However, after arriving in Canada, he told his new family doctor about his condition, and she ran many tests. The results showed that he has both liver cirrhosis as well as hepatitis D co-infection. While being supported by his family and clinical staff, Rav awaits new treatment options for hepatitis D.
Joe
After being diagnosed with hepatitis B, Joe didn’t seek regular monitoring because his doctor didn’t provide information about what his diagnosis meant. Years later, he learned that his liver was inflamed, and that he was also infected with hepatitis delta – a serious coinfection of hepatitis B. Joe began to learn as much as he could about his coinfection, and after discovering that treatments were limited for hepatitis delta, he joined the only clinical trial available at the time. Although Joe had to discontinue the trial early, his health is now stable, and he is glad he has been able to contribute to important research. Even after his difficult journey, he is still hopeful that better treatments, and even a cure, are on the way.
Zaya from Mongolia
After her diagnosis of hepatitis B, Zaya was determined to learn more about hepatitis B and D to help her family and people living in Mongolia and protect her future family.
Dan from Romania
Dan from Romania shares his story of living with hepatitis B and Hepatitis Delta.
Natuhwera from Uganda
Natuhwera from Uganda talks about living with hepatitis B, and getting tested for hepatitis D.