#BtheVoice Video Library
The B the Voice story bank is a global effort to elevate the voices of those living with hepatitis B. It’s a compliment to the #justB storytelling campaign that focuses on the U.S. Each story is unique and is told by a person living with hepatitis B. Many of the topics covered by the storytellers include stigma, discrimination, access to healthcare and more.
Nargiza’s Story of Living with Hepatitis B and Delta in Uzebkistan
Nargiza shares her experience of being diagnosed with hepatitis B and later hepatitis Delta, which significantly impacted her health and life over time. She reflects on her childhood, family life, marriage, and motherhood, noting both emotional support and the challenges of managing chronic illness. After her diagnosis, she adopted stricter hygiene practices and became more conscious of transmission risks, while also navigating fear and uncertainty about treatment and costs. Despite ongoing health concerns and family history of hepatitis, she remained active in her personal and professional life, working in the public sector and maintaining meaningful relationships and travel experiences. Ultimately, she describes building resilience through lifestyle changes, learning about her condition, and focusing on what brings her peace and happiness.
Dilrabo’s Story of Living with B and Delta in Uzbekistan
Dilrabo’s journey with hepatitis B began 18 years ago, but everything changed when she was later diagnosed with hepatitis D. At first, she felt fear, confusion, and isolation — unsure how to move forward. With the help of her caregiver and support from others living with hepatitis B and D, she slowly found strength and hope. Today, she manages her health through medication, lifestyle changes, and self-care. Her story is a powerful reminder of the importance of support, staying positive, and never giving up.
Dilnora’s Story of Living with Hepatitis B and Delta in Uzbekistan
Dilnora has been caring for her sister with hepatitis B since 2005, offering physical, emotional, and logistical support throughout her health journey. After her sister was later diagnosed with hepatitis D, Dilnora shifted her academic and professional focus to hepatitis education and advocacy. She pursued graduate studies in health communication, worked as a patient navigator and researcher, and helped launch a support group for people with hepatitis B and D in Uzbekistan and the U.S. Dilnora emphasizes the importance of mental health, family communication, and community support in managing chronic illness.

